Once again, Rep. Noujaim laced up his running shoes and took part in the 6th annual Bob Veillette 5K run through the streets of Waterbury. On a beautiful late-summer day more than 300 runners- including Rep. Noujaim and two House Republican caucus staffers who are also former co-workers of Veillette- hit the streets in honor of longtime Greater Waterbury fixture Bob Veillette to raise money for his care and bring awareness to “locked in” syndrome. Veillette suffered a debilitating stroke in 2006 causing the “locked in” syndrome.
What is Locked-In Syndrome?
Locked-in syndrome is a rare neurological disorder characterized by complete paralysis of voluntary muscles in all parts of the body except for those that control eye movement. It may result from traumatic brain injury, diseases of the circulatory system, diseases that destroy the myelin sheath surrounding nerve cells, or medication overdose. Individuals with locked-in syndrome are conscious and can think and reason, but are unable to speak or move. The disorder leaves individuals completely mute and paralyzed. Communication may be possible with blinking eye movements
There is no cure for locked-in syndrome, nor is there a standard course of treatment. A therapy called functional neuromuscular stimulation, which uses electrodes to stimulate muscle reflexes, may help activate some paralyzed muscles. Several devices to help communication are available. Other treatment is symptomatic and supportive. While in rare cases some patients may regain certain functions, the chances for motor recovery are very limited.
More than $18,000 was raised through registration, pledges and contributions from local businesses and private donations.